Heart failure and other things blog 24 update

Quick update – I spoke to the GP today and have put up the dose of Bisoprolol beta-blocker to cope with the increased rate of palpitations. The higher dose (an extra 1.25mg) had an immediate effect and the palpitations have settled.   He is going to try me on a different ACE inhibitor drug and […]


Heart failure and other things – blog 24, Changes in December 2018

It’s some time since I wrote a blog. Life was going well and I had nothing new to say. I was concentrating on finishing my fourth book in the Starbirth series. However, appearances can be deceptive.   I was having problems with side effects from Candesartan, the ACE inhibitor that reduces tension in blood vessels […]

heart letter

Heart failure and other things blog 23 – success!

  I never thought I would be writing this post, especially after recent events that left me feeling as though I didn’t have much time left. As I mentioned in previous blogs, one of the pacemaker leads wasn’t functioning at full capacity and when the lead was tweaked to increase its voltage it caused a […]

heart trace

Heart failure and other things blog 22 – heart traces

    We’re into mid-July and I’ve only just received an appointment for the echocardiogram; fortunately it’s for next week so I might get some answers about the current state of heart function soon. In the meantime things went wrong again for me and I was taking more and more of the diuretics to compensate […]


Heart failure and other things blog 21 – developments

In a condition that has a lot of ups and downs, I’ve had a down recently. That’s why there has been a gap between blog posts, because I didn’t want to write about it in case people who are newly diagnosed apply it to themselves and get worried. This blog is very personal and it’s […]


Heart failure and other things, blog 20 – low iron and low salt

I haven’t put another blog on for quite a while, mainly because there were no new developments, but in the last fortnight I’ve heard from a hospital and also had two appointments with a nurse from the heart failure team based at Bristol.   First, the cardiac pacing. Since seeing the cardiologist at Bristol in […]

Guest blog 4 – Paul Griffin. The Strange Event – An Irresponsible Act!

My wife and I recently travelled up to London to see our son performing at the Royal Albert Hall as a member of the Massed Bands of the Royal Marines. Afterwards we walked to a restaurant opposite South Kensington underground station to meet other family members and to eat. The walk was no longer than […]

Guest blog 1 – Paul Griffin, Early Experiences with Dilated Cardiomyopathy

Jackie has very kindly asked me to provide some of my early experiences of Dilated Cardiomyopathy mainly, I think, because I have been living with DCM for 18 years, have had 2 ‘ordinary’ pacemakers, 4 biventricular pacemakers and I helped set up and run two Support Groups in different parts of the country. First off, […]

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